Were less than a week away from the wedding. Abby and relaxed this weekend since the next few will be pretty busy. We have the wedding next weekend and then the honey moon the weekend after. I started hearing from friends this weekend, which got me excited for next weekend. My nervousness is building a bit, but I am just going day by day. You can stress yourself out, and my mindset these days is to just relax there’s know reason to worry.
We tried a place I heard about on a flight to Vegas. It’s a restaurant called Dragon Kings Daughter. I had some top quality sushi and one of my favorite beers Gumball head on tap. We also did a lot of odd and end things like get Bancroft a bath trim Abby’s hair and stop buy the bank.
I tell you what Lyft and Uber make life so much easier just being to move between locations easily and on our terms. I tend to try and get to a shopping center with multiple things I need. For example we dropped Bancroft off at the pet groomer, I walked down to the UPS store and mailed something off to Bose, and then Abby and I walked to a Chinese place for lunch. After that we caught an Lyft to the bank, and then to the Salon. When she was done we caught a Lyft back to pick up Bancroft and then to go home. The amount of things we got done at one time was great and before this would not have been possible. I say all of this, because I see New York trying to put restrictions on Lyft and Uber slowing things down, and complicating things. Hopefully things sort themselves out, and that Louisville never threatens my independence. I see so many posts on Facebook and Twitter I’ve done it also getting angry when Lyft or Uber deny a ride for having a service animal. The thing is Yellow Cab did this also, but the thing with them is I can’t see the cab number with them. If Uber or Lyft do this I have the drivers info on my screen.
Recently I’ve started a new obsession yes move over technology. I started a love for real leather briefcases and bags. I’ve been researching them for about 2 months reading up on vegetable tan vs chrome tan. My main reasoning for wanting one is I like the idea of using one bag for a life time and being able to pass it along to your family. If I use this bag for the next 20 years, and then I’m able to give it to one of my nephews somethings just really neat about that. Anyway I got the Marlondo double spaced briefcase. My god it’s beautiful. I’m blind lol, but it smells so good, and so soft feeling. It was a bit stiff at first, but I’ve broke it in. It can hold a lot, and I can pack my lunch in it, plus all my tech. It’s heavy as these full grain leather things are, but it’s just so nice. If anyone’s looking for something like this just ask I will share my knowledge in research on these bag companies. I also was able to speak to a leather maker in Australia for a little bit, and talked to him about kangaroo leather which is much stronger than cattle leather it’s also thinner. He is selling a kangaroo leather wallet I have my eye on. I don’t know what’s caused me to geek out on this, but I’m loving it.
Something I’ve stumbled upon recently is these YouTube channels from Gamers from Twitch. These guys and girls have channels where they talk about there lives and they have a huge following. It must be a generation thing, because I don’t get it. I’m going to watch a guy or girl play a video game all day and not play myself? When I was growing up we had game faqs, but the idea was you’d still play it yourself. To top it off though these YouTube channels are like podcasts or radio shows where these kids just talk about life. It’s so weird that people are so obsessed with these video game players. I’m not the brightest ball on the tree, but I just don’t get it.
A week has gone by and I am doing okay. I miss Frasier a lot. My walk with a cane takes about 24 minutes where it was 13 to 15 with him depending on the day. I find a lot more trees and bushes than I did with him. Our house has changed also with him gone. This weekend I think I hit a bit of depression realizing I’m without him.
He met the fedex driver Saturday and got a treat according to Lee’s text. He is a good boy and is doing wonderful with them. I think it is what he needed and that helps. I never worry about him, because he is with people that love him I just miss him.
It’s strange before when I used my cane no one talked to me, but now that I’m back to it I am attracting some interesting people. I will try and video some of the experiences along the way and put them up here. Last week I met a guy who says his great grandfather took the famous picture of Babe Ruth’s called shot. He talked about it the entire bus trip until I got off. It was a really cool story actually.
This blog amazes me how much visits it gets from around the world. Frazier’s retirement post was viewed a lot in India, South Korea, Japan, and the UK. Of course it does well in the United States also, but I could have never imagined it reaching all of those countries pretty regularly. Again thank you for reading.
I am now writing my blog in an app called Drafts 5 on the I-pad Pro. It’s really nice and allows me to have a few options that I don’t have in the Apple Notes app. I also from time to time say Alexa how do you spell then a word. Lol.
Abby tried her dress on this weekend and got some alterations done and it should be ready next weekend. It’s hard to believe the day will be here in about 2 months now. I’m getting excited, but nervous.
My Apple AirPods didn’t hold up so long. I have had them about a year, and I”be noticed a pretty bad battery drain. They used to last about 5 hours a day now they’re down to 3. Still not bad for the size of them, but it makes a work day a bit harder. On another electronic thing though one thing about losing Frasier that has been tough I miss talking with him on the way to work. I wouldn’t say much, but at times I may say it’s hot buddy, or not much traffic today. I now wear the Bose Soundware until I get to the bus stop and then put it in my bag. I like it, because it still keeps my ears open so I can listen for traffic. Also pausing it is quick and simple. Thank you Bose for this product I also use it a lot around the house when taking trash out or cleaning.
The wedding planning was going great until Abby called the park to check something and they said we had picked a smaller venue which we confirmed when ordering in December but whatever. Long story short we found a place and also a spot for the reception it will just be smaller than we intended. Making cuts was hard because I didn’t want to hurt anyones feelings. I think at the end of the day I did good with making a selection. All cousins are off the hook. I wanted y’all there, but we have a huge family. I also didn’t want to invite 1 and not another causing hurt feelings. I hope everyone understands Abby and I still love you.
It’s hard to believe were getting close to the wedding day. It goes fast. I leave for Germany in a week which I am looking forward to. I had to make a tough choice, but I think I made the right one. Germany has no ADA so it is up to each proprietor whether or not they would allow Frazier to enter there venue. I talked to some blind people who said they had good luck, but others who didn’t. I called the hotel and was told he could sleep at the hotel with me but couldn’t enter diners and such with me. Thank god for the ADA I know there is a bill trying to get rid of it, but it’s this bill that has brought so much progress for those with disabilities here in America. Shame on you congress and etc. for trying to over right the progress made here.
Frazier and I are doing well. We went on another trip about a month ago to SanDiego . I really want to go back and take Abby. They had so many audible traffic signals and walking around there was nice. Frasier was a champion. I am amazed with his ability to backtrack.Robin was good at this also, but he always remembers. He has had a barking issue and that still comes up from time to time, but he is getting better. I can’t wait to take him to a ball game which when we get back to Germany were going to one. I get back Sunday and we’re actually going Tuesday night.
I am typing this on an IPad Pro which I got recently. I wasn’t sure if I would like it, but I am going to sell my MacBook Air. Typing with a keyboard on this thing feels great, plus with multitasking with apps it’s just as nice as my Mac was. Plus it’s more portable at the end of the day. I am not much of a computer user these days anyway. I decided to go with the cellular version on T-Mobile. One cool thing is I am leasing it month to month so when the next IPad comes out I can give it back for the new one if I want. Work also wanted me to get one so they are pitching in money also which is worth it.
Abby and I have been playing with a new service called Aira also. We love it. The first time Abby used it she went up and was able to get her own drink from a soda fountain. Basically how Aira works is you have glasses that connect you to an agent who can see from the camera in the glasses. They also can see where you are with GPS. I used it in Chicago to get me to the pet relief area in the Airport, and also to find my gates that changed 2 or 3 times. It’s awesome, because you don’t have to ask for assistance you can get the info from the Aira agent and then do it yourself. If I had waited to get an Airport worker in Chicago that would have waisted time depending on how much time until your next flight things may not be possible to do anyway.
I will make notes while in Germany and do an update when I get home. T-Mobile gives me free data while there so I’m glad that isn’t a concern. I love them as a company and coverage is getting better all of the time. In Louisville it is better than Verizon with speeds and in buildings which surprised me. Anyway I hope all of you are well. I am going to miss Abby, Bancroft, and of course my boy while I am gone. I have to go back to the dreaded cane. I hope to do some travel on the train while I am there. I’m also working on taking a ride on the autobahn I want to go over 100. I have 2 free days so only god knows what kind of trouble I can get in to. Lol I will just miss my family back in KY for sure.
It’s been awhile since I’ve talked about the reason I’m blind. When I was a year old I was diagnosed with a cancer of the eye called Retnal Blastoma. Which after hearing the other names of eye diseases if I must say Blastoma sounds kind of spacey oriented. Pigmatosa or however you spell that just sounds horrible. Usually rental blastoma only takes one eye, but mine was caught late, so it took both. My mom and dad noticed me crawling in to walls or not looking at my food before I ate it, and decided to take me to Fort Wayne for a doctor to look at it. They were then sent on to Riley Children’s Hospital where I was the seventy fifth case in Indiana.
The doctors for the most part wanted to just use me for studies, and thought there wasn’t much chance to save my life. One doctor in particular said lets remove them, and try. They did and I made it. For the next 8 years of my life every 6 months I had to go to Indy for check ups. I remember the long ass drives to Indy when your a kid those things stick out. I felt like I spent more time there than most places. My childhood was really normal I climbed trees, chased goats around and tried to ride them like horses, played a ton of basketball. Being from Indiana that’s a requirement. I’ve often said I don’t remember being blind as being a problem until around puberty. Which is interesting. Maybe it’s the innocents of bing a kid I’m really not sure. That may have been a question as well, but I’m tired so forgive me we will just pretend it’s retorical.
When I first went to Riley my dad was farming pretty much full-time, and my mom might have been at the bank still, but was mainly a stay at home mom for the first few years of my life. They stayed at the Ronald McDonald house while I was going to my cancer treatment and they said that it was a really great place. They had enough worries not to have to worry about how they could afford a hotel on top of things. I’ve always been grateful for things that happened back then.
For being blind I’ve gone back and forth on emotions. I used to think one day I’d just get it, and I’d be 100% fine. I think being blind is for me easy most of the times. On a windy day, and I have a headache it’s a bit challenging to focus clearly. At work I hear a screen reader talking all day, and then people on the other side, so sometimes at night I come home and need a few minutes without noise. I used to think I could work really hard and make people understand I’m just like them I just can’t see. I’ve given up on that thought awhile ago. I think blindness is something most can’t get unless they’re faced with it. I wrote something a few years ago I liked, so I will share it now about cancer.
The myth is about cancer is that somehow you beat it, and life is magically better. the reality is usually cancer takes something from you, and then your hopefully left to deal with the aftermath. For example when people look at me I survived cancer, but they offen don’t even know that or would even focus on that they focus on the fact I’m blind. I can’t hide that it sticks out anywhere I go. A job interview it’s there. I’d love to be able to hide it when possible but Robin just won’t disappear for those interviews. Maybe I have a different perspective I haven’t really talked to a lot of survivors, so this is just my longwinded thoughts. I imagine anyone who survives breast cancer or something along those lines are still left with the scars. My thoughts on cancer really is yes you can win, but it leaves it’s marks.
That’s a little peace I found I wrote from a few years ago. Blind people are like anyone else we all are on are own levels, and we all have a different skill set. Like I said earlier I’ve gon through a lot of different struggles. My teen years I was probably depressed living in the country and I couldn’t drive like my friends. My friend/brother Brandon or Sean would pick me up a lot, but it wasn’t the same of having that freedom. I think right now I’m probably the healthiest I’ve been, because I realize the positives and negatives. Look being blind I’m truly an individual you can stand out easier if your upbeat. You can only play the cards you were delt and just move on. I think rather than being down and sad about things that aren’t going to change is pointless move on and make a difference. I think I will still struggle at times with not being able to see. I think a lot at nights when I can’t see the sky or stars that part kind of blows. I’ve never been married, but I feel a little weird about not being able to see my wife walking down the isle. I don’t know why that sticks out so much, but it does. I think it’s because in that moment your focusing on one beautiful woman coming to join you I jus think somewhere I’d be a bit sad but who knows. I think maybe just feeling her in her dress before hand might fix that but it’s something I’ve thought about over the years. I think in a weird way rather than face that I’ve pushed people away somewhat afraid to face that. Again did I mention I feel pretty healthy right now? You never stop learning in life, and you hopefully grow from mistakes if not you may want to start there. Haha that’s my advice.
Anyway christ that was long. Tonight I went to the Ronald McDonald house which is something I’ve been working on for awhile. I took some Derby pie that I got from a great place, and I worked with a catering company for the food so it was homemade Look I can cook certain things like burgers and crab legs but honestly I’m not the best at it. I make some mean Ramen noodles. Anyway my crab legs are amazing. Being blind doesn’t hamper me being able to cook it’s mainly laziness, and cooking for one sucks honestly. Why do I want leftovers? Anyway Everything came together very nicely. I also let Robin off work for a few people to play with. They loved it so did she. When we got home she was wound up and wanted to play ball a little more than normal. For a Bachelor I thought everything went off well! At first I was a little nervous, because the people I was working with hadn’t really ever interacted with a blind person, but thats pretty normal for me to work with these days. After a brief description of myself and explaining why I wanted to get involved it was fine. I met a little boy who I am going to try to take to a Bats game. No one likes to go to the Bats games with me my friends mainly hate baseball, so I usually go by myself because it’s my therapy. Also I realize how long the Reds are going to suck and that makes me smile somewhere inside if it were only the Cardinals instead. I can stomach Cincinnati but St. Louis just rubs me the wrong way being a Cubs fan. Anyway he knew a lot about the game, and so I will check with my Bats contact to see if we can make something happen. I asked him if he’d ever gone to a game and had a stadium hotdog? He said no, so we’ll have to change that. Again I don’t know why I feel this way, but nothings better than ballpark hotdogs. Milwaukee has sausages that are out of this world good literally. If I had to pick my favorite park for a hotdog it would be Miller hands down.